---
title: "Click for video: "A girl born with an incredibly rare condition that…"
date: 2022-01-23
source: facebook
type: Archer T. Ships added a new video.
---

# Click for video: "A girl born with an incredibly rare condition that…

*January 23, 2022 · Facebook*

::::::: {}
::::: {}
[](your_facebook_activity/posts/media/videos/514349660255064.mp4){target="_blank"}

::: {}
Click for video:
:::

::: {}
\"A girl born with an incredibly rare condition that means her heart developed outside of her chest has said she will not let her condition hold her back. Virsaviya Borun-Goncharova, 11, was born with an extremely rare condition called Pentalogy of Cantrell. It caused her rib cage and abdominal muscles to not form properly during her mother's pregnancy. The condition, which only affects about one in a million people, doesn't cause her any pain in day-to-day life but does leave her heart exposed as it lies just below the surface of the skin.\" https://www.mirror.co.uk/news/world-news/girl-11-born-heart-beating-23304688 More info https://rarediseases.org/rare-diseases/pentalogy-of-cantrell/
:::
:::::

::: {}
\"A girl born with an incredibly rare condition that means her heart developed outside of her chest has said she will not let her condition hold her back.\
\
Virsaviya Borun-Goncharova, 11, was born with an extremely rare condition called Pentalogy of Cantrell.\
\
It caused her rib cage and abdominal muscles to not form properly during her mother's pregnancy.\
\
The condition, which only affects about one in a million people, doesn't cause her any pain in day-to-day life but does leave her heart exposed as it lies just below the surface of the skin.\"\
\
[https://www.mirror.co.uk/news/world-news/girl-11-born-heart-beating-23304688](https://www.mirror.co.uk/news/world-news/girl-11-born-heart-beating-23304688){target="_blank"}\
\
More info [https://rarediseases.org/rare-diseases/pentalogy-of-cantrell/](https://rarediseases.org/rare-diseases/pentalogy-of-cantrell/){target="_blank"}
:::
:::::::